Do you have a Chronic Illness/Pain?
Looking for a blog that doesn't overwhelm you?
Like to be informed, inspired, and smile?
Then I Welcome you to my blog and hope you get everything you need or want from it!!
I would like to invite you to my RSD Coaching™ website. It also provides information for you.
www.rsdcoach.com Come see me!!
Thursday, December 31, 2009
HAPPY NEW YEAR
Tuesday, December 22, 2009
Brittany Murphy Had "Large Amounts" of Prescription Meds in Bedroom
Sunday, December 20, 2009
Freedom From Pain
Freedom from pain
A 24-year-old Christiansburg woman is regaining mobility and making plans to attend graduate school after treatment put her in remission from years of pain.
Raided doctor's patients complain they're "Left Out In The Cold"
Raided doctor's patients complain they're 'left out in the cold'
This really upsets me!! My heart goes out to ALL of "Taylor's Orphans"!! My thoughts and prayers are with you ALL on coming through this without extremely harmful repercussions!! ~God Bless "Taylor's Orphans"
Thursday, December 17, 2009
My Friends Little Sister - Cristie Noel Campbell
It is my friend's little sister whose name is Cristie Noel Campbell.
She is helping to lead worship at her church at Bethesda Community Church near Ft. Worth, Texas. She has an incredible voice and everyone needs to hear her singing this song!!
Wednesday, December 9, 2009
Tuesday, December 8, 2009
Hotel Blamed for Complications of Apnea
By NICK DIVITO
December 8, 2009
Gold sued the Palazzo Hotel in Clark County Court. He claims hotel officials failed to warn him when he checked in that they were planning a power outage in the early morning hours of Dec. 17, 2008.
Gold says that when the power went off at 3 a.m., the machine stopped and he woke up. He says he stumbled through the dark room to find a light switch, but tripped and hit the palm of his right hand on a nightstand, causing him to develop Complex Regional Pain Syndrome, or Reflex Sympathetic Dystrophy.
Gold says had he known about the planned power outage, he would not have stayed at the hotel.
He demands at least $50,000, and says the hotel failed to warn him of the power cutoff, and failed to provide a flashlight in his room for such emergencies.
He is represented by Ralph Rohay.
Friday, December 4, 2009
The Passing of Janice Kay (Schmidt) Everson
Sunday, November 22, 2009
Local teen tops national wheelchair tennis rankings
Source
Woman says doctors' negligence left her disabled
A Fort McMurray woman has filed a $475,000 medical malpractice lawsuit against six doctors in the northern Alberta city after alleging she was left permanently disabled when a fracture in her left foot was not identified.
In an Oct. 9 statement of claim, Karen Stuckless alleges she went to the Northern Lights Health Centre after she injured her left foot and ankle in an Oct. 13, 2007 fall.
Stuckless claims she was diagnosed with a sprained left ankle following X-rays and given Tylenol 3 for her pain.
She alleges she was in significant pain and returned to the hospital eight days later.
Another X-ray was taken and she was told no fracture or displacement was seen and she was discharged with a cast boot on her ankle.
On Nov. 9, 2007, Stuckless says she went to her family physician and was told to get further X-rays. She says she did and a different doctor identified a projected fracture in a bone in her foot and she was told to get further therapy.
Four days later, Stuckless claims she returned to the hospital and the cast boot was reapplied to her ankle and she was told to keep mobile. Two weeks after that she went back for a follow-up and alleges swelling was identified in her left foot and she was told to not put weight on it.
She claims she returned after another two weeks and was told the fracture had healed and she should gradually increase her activities and begin physical therapy.
On Dec. 23, 2007, Stuckless went to the hospital complaining of ongoing pain, especially with weight bearing, and alleges another X-ray was taken and she was advised there was no evidence of bone healing and a CT scan was arranged as well as a referral to an orthopedic surgeon.
On Jan. 2, 2008, Stuckless claims she was diagnosed as suffering from reflex sympathetic dystrophy (RSD) and alleges it was caused by the failure to identify the fracture and offer her appropriate treatment.
Source
Thursday, November 19, 2009
Former Kiss Drummer Battled Breast
Wednesday, November 18, 2009 at 5:18 pm
Peter Criss grew concerned after he noticed a small lump in his left breast. When the Catman, as he was known during his days as the make-up smeared drummer for Kiss, noticed that the lump was growing larger and more painful, he decided to see a doctor. After a series of tests, he soon learned that he had breast cancer, the Associated Press reports. Two years and two surgeries later, Criss is cancer-free—thanks to his proactive approach, doctors were able to diagnose and treat the condition early. Now the former rock star is on a mission to educate men about the disease.
"It's something we think guys don't get," Criss said. "Guys get prostate cancer, heart attacks. Men are men — women get breast cancer. Or so I thought... It has nothing to do with macho," said Criss, best known for the 1976 ballad "Beth," which remains Kiss' biggest hit to date. "There's no tougher guy than me. I was born in Brooklyn, I was in gangs, I did the whole battling thing my whole life. I think a man is a man if he steps forward and says, `There's something bad going on and I need to deal with it."
Source
Sunday, November 15, 2009
Virginia Teen Athlete In Wheel Chair After H1N1 Vaccine Shot
You read that right: There is no requirement that doctors send reports of vaccine side effects to any health authority at all.
Sunday, November 1, 2009
Climb Until Your Dream Comes True
and more than you think you can do.
Often the road will be rugged
and the hills insurmountable, too.
Always remember, the hills ahead
Are never as steep as they seem,
And with faith in your heart start upward
And climb 'till you reach your dream.
Nothing in life that is worthy
Is ever too hard to achieve,
If you have the courage to try it
And you have the faith to believe...
Faith is a force that is greater
Than knowledge or power or skill
And many defeats turn to triumph
If you trust in God's wisdom and will.
Faith is a mover of mountains,
There's nothing that God cannot do,
So start out today with faith in your heart
And Climb Until Your Dream Comes True
Tuesday, October 6, 2009
Couple ready to hit road in customized van
The Daily Item
Barbara Schaffer and her husband, Paul, arranged for Harvey, their customized van, to have enough room for trips to music festivals around the country.
Liz Rohde / The Daily Item
Sunday, October 4, 2009
Medical marijuana supporters rally at Capitol
Rep. Mark Pocan, D-Madison, and Sen. Jon Erpenbach, D-Middleton, are co-sponsors of the newly drafted Jacki Rickert Medical Marijuana Act, which would protect Wisconsin patients from arrest and prosecution and allow them or a designated caregiver to possess and grow a small amount of cannabis for medical use, said Gary Storck, communications director for the nonprofit advocacy organization Is My Medicine Legal YET?
"It is time that we address medical marijuana as an issue of providing comprehensive health care to all people," Pocan and Erpenbach said in a memo to legislators. "The patient and their doctor should have as many options as possible available when treating a patient's medical condition."
Rickert, a 58-year-old grandmother from Mondovi who has Ehlers-Danlos syndrome and advanced reflex sympathetic dystrophy, founded IMMLY in 1992. In 1997, she led a 210-mile trek of patients in wheelchairs from Mondovi to Madison to advocate for legal access to marijuana.
Rickert said she began using marijuana to stimulate her appetite after dropping to 68 pounds. "I'm alive because of cannabis," said Rickert, who now calls herself "a heavyweight" at 93 pounds.
"It's got to be this bill, this time," Rickert told supporters Sunday, saying that every time someone else signs on in support of medical marijuana, "It's like saying, 'More hope.'"
Storck, who has been advocating for medical marijuana for decades, said cannabis has helped him retain his eyesight, which he began losing from glaucoma as a child. He agreed that the time for passing legislation could be now or never. "Gov. Doyle has been willing to sign it all along," he said, adding, "The legislature has never been in a position to pass it until now."
Storck said that while there is a lot of support for the legislation from people throughout the state, "We need them to step forward and let their legislators know it."
The act is based on a Michigan law passed by voters in November 2008, Storck said. It also includes provisions from a Rhode Island law that would allow patients to obtain medical marijuana from dispensaries if they cannot grow it themselves.
Source
Sunday, September 20, 2009
That's My King....Do You Know Him??
From Dr. Shadrach Meshach (S.M.) Lockridge’s famous sermon:
The Bible says my King is the King of the Jews. He’s the King of Israel. He’s the King of righteousness. He’s the King of the ages. He’s the King of Heaven. He’s the King of glory. He’s the King of kings, and He’s the Lord of lords. That’s my King. I wonder…Do you know Him?
Thursday, September 3, 2009
Sailing Hero Gives The Rest Of Us Food for Thought
September 3, 2009
Having fought the elements, exhaustion and the extreme limitations of her own body, 37-year-old Hilary Lister calmly sailed into Dover as well as in the record books today being the first female quadriplegic to circumnavigate Britain solo.
The Oxford-graduate biochemist, who’s afflicted by a rare, degenerative neurological disorder that has paralyzed the young woman from the neck down, has completed the final portion of a marathon journey undertaken in a string of 40 day-long sails.
With the help of advanced technology, which allowing her to control the sails by sucking and blowing through plastic tube, Lister sailed solo with help of a team only to attend to her when she got into and out of her sailboat, Me Too. She finally sailed over the finishing line to enthusiastic crowds at 6.45pm.
The young woman expressed contentment upon her return to Dover, saying that the highlight of her expedition was witnessing marine wildlife at close range.
Lister, hailing from Canterbury, Kent, has reflex sympathetic dystrophy and is only capable of moving her head, eyes and mouth. Tempted in the past as she went through the darkest of moments to end the physical ordeal she suffers everyday and the frustration which comes from being imprisoned in her own body, she now claims that sailing has saved her life.
3 Ways Your Thoughts Can Help You Heal - Ways You Thoughts Can Help You Heal | Parade.com
Our thoughts can make us sick, and they can help us get well.
Here are ways to adjust your mindset to promote good health.
Take A Deep
Take A Deep Breath Hold it, exhale, then repeat for 10 minutes. Take a walk, preferably in nature. Breathe in that fresh air.
Laugh!
When you laugh, you pump more oxygen into your lungs, improve blood flow and boost your immune system.
Keep A Journal
Writing about emotionally charged events helps us deal with them mentally and physically.
Source
Tuesday, September 1, 2009
What's YOUR Best "Camp Name" Contest!!!!
Our guest today, Kathy Gruver is a 'Certified Medical Massage Therapist" (among other titles) and she has made an offer to my show listeners!!
Here's the offer:
Come up with a "Camp Name" and send it to me at winninglife@rsdcoach.com with the subject line of: "Camp Name", and I will send to Kathy.
Kathy will then pick the best name and the winner will win a copy of her dvd titled:
Therapeutic Massage at Home -- Learn to Rub People the Right Way™.
Like me, you will be so grateful for this dvd!!
Learn more about Kathy and her dvd at:
www.HealingCircleMassage.com You'll be glad you did!!!!
If you have not listened to the show and have no clue as to what I am talking about in this post, go listen to the show now at: www.rsdcoachlive.com and then send me your best "Camp Name"!!
Wednesday, August 26, 2009
Brave Hilary nearing finish of her epic journey
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She is currently off the coast of East Anglia sailing south towards her final destination of Dover, which she is due to reach on Tuesday.
Hilary, 36, from Selling, suffers from Reflex Sympathetic Dystrophy, a degenerative disease which started to show itself when she was a child so controls her craft using a set of straws and her breath.
She is bidding to become the first disabled woman to sail solo around Britain.
Hilary set off in May, on her second attempt to complete the course, which includes venturing into the North and Irish seas, as well as navigating the Caledonian Canal.
The trip had to be postponed last year at Newlyn, in Cornwall, due to bad weather and technical issues.
Undeterred she returned to Newlyn this year to start again from where she left off, determined to finish it this time.
But this will be far from her first achievement, she is already in the record books as the first quadriplegic to perform a solo-sail across the English Channel.
Two years later, she was able to add another feat to the list, becoming the first female quadriplegic to sail solo around the Isle of Wight.
Hilary is sailing her boat, called Artemis 20, using a 'sip and puff' system.
This involves three straws, which are hooked up by pressure sensors, controlling a computer already programmed to react to her commands.
Hilary uses her breath to give directions, for example, one straw works the tiller, so if Hilary puffs it will go to port and if she sips it will go to starboard.
Each night she is towed into a port, with a total of 40 stops along the way.
She is expected to receive a hero’s welcome when she returns to Dover Harbour on Tuesday, after three months sailing.
On the day, KCC cabinet member for communities Mike Hill will make a special presentation to Hilary and her team to mark their enormous achievements.
Councillor Hill, also an avid sailor, said: "It has been a real honour to meet Hilary and support her latest challenge.
“I hope her tremendous efforts have inspired other people to have the determination to overcome their own obstacles and we very much look forward to welcoming her back to Kent."
Hilary also has a trust set up in her name, which raises money to help other disabled sailors and is expected to raise £20,000 when she completes her voyage.
Through her round Britain challenge, she also hopes to encourage and inspire people towards achieving their own goals.
Tuesday, August 11, 2009
Debra Stein dies - Berkeley land use expert
Corey Paul, Chronicle Staff Writer
Tuesday, August 11, 2009
Ms. Stein, president of the San Francisco public affairs firm GCA Strategies, represented the wealthy and the down-and-out equally, from corporate Burger King to homeless shelters. She left her mark on the San Francisco skyline, helping to win approval for a number of structures, including the South of Market high-rise at 55 Second St. and Sutro Tower, the three-pronged antenna that pokes through the fog.
She was known nationally as an expert on understanding NIMBYism or what motivates residents who oppose development beneficial to the community.
"The person who deserves credit for my career," Ms. Stein told Affordable Housing Finance magazine last year, "is a woman who spit on me at a public hearing 20 years ago. As I was wiping saliva off my arm, I said to myself, 'I am going to figure out why that happened and never let it happen again.' "
Ms. Stein, a Berkeley resident, published four books and dozens of articles about raising community support and finding political solutions for controversial land use projects. But affordable housing, especially in her last years, was her dearest cause.
Born Sept. 6, 1960, in San Jose, Ms. Stein graduated from UC Berkeley in 1981 with a degree in political management. After graduation, she worked for the San Francisco public relations firm Judith Brown and Associates. She rallied support of the Hacienda Business Park in Pleasanton, which now employs thousands.
For eight years, Ms. Stein ran a public relations firm. In 1986, she met architect Jeffrey Heller while they worked on a project together in City Hall. They married the next year.
At the time she met Heller, Ms. Stein was taking night classes at University of San Francisco School of Law. She graduated in 1987.
In 1990, Ms. Stein founded GCA Group. Four years later, with more associates, it became GCA Strategies.
In 2004, Ms. Stein wrote to friend Cindy Wilson: "I'd actually like to get out of the rat race a bit. The opposite of ambition is satisfaction - I've been on the ambition route. I'm starting to enjoy the sit-back-and-enjoy-life side of things more."
She delegated work at GCA to others so she could focus more on her passions: traveling the world with her husband and fighting for affordable housing.
By then, Ms. Stein was co-chair of the Northern California chapter of the Jane Austen Society, an avocation she pursued after reading Austen's "Pride and Prejudice" and becoming drawn to the novelist's themes of ethics, morality and marginalized women.
Development and architecture organizations frequently booked Ms. Stein to speak at seminars. It was on one of these routine ventures, in San Jose, that she died, Wilson said.
Ms. Stein had reflex sympathetic dystrophy syndrome, suffering chronic pain for about 15 years.
"She was remarkably stoic," Heller said. "She never let it get in her way."
Ms. Stein is survived by her husband, stepdaughter Rebecca Heller of Los Angeles, and brother Doug Stein and sister Sharon Moerner, both of San Jose.
A memorial service was held last Wednesday.
E-mail Corey Paul at cpaul@sfchronicle.com.
This article appeared on page D - 8 of the San Francisco Chronicle
Tuesday, July 21, 2009
Lyric Contest!!
I know there are some very talented people out there, and I wish I were one of them....but, I'm not, so I am turning to you!!
If you, or someone you know, can write lyrics - you are gonna want to read this!!
I am holding a contest for someone to write lyrics for my radio show as a theme song! If you have never listened to my radio show, here is the link: www.rsdcoachlive.com go on over and listen to a few of the previous shows and you will know in what direction you will need to go when writing those lyrics. The name of my radio show is: "Winning Life Through Pain" and every show is full of helpful information for so many.
So now I bet you are wondering what kind of prizes are there for this contest, right?
Well, that's a real good question and one I would be curious of as well, so here ya go:
1st Place:
One Month Coaching -$100.00 Value
2nd Place:
Gift Card for Amazon - $50.00 Value
3rd Place:
Gift Card for Amazon - $25.00 Value
****UPDATE****
There has been a winner named as well as the 2 runner ups....Thank You ALL for sending in so many WONDERMOUS suggestions....I was right....there are LOTS of talented people out there!!!! Thank You, Thank You, Thank You, etc.!!
So get your pens or pencils moving and write up some lyrics that would fit with what my radio show is all about and send it to me at: winninglife@rsdcoach.com
Contest starts July 22, 2009 until August 5, 2009.
I am so excited about the possibilities you all will be sending me....it will be so much fun for all of us!! SO put those thinking caps on, write down your thoughts and make the best darn lyrics you can!!
Looking forward to reading your lyrics....I know they will be absolutely fabulous!!
Monday, June 29, 2009
Where have I been?? =)
So I am going to update you all on what all I have been up to that has kept me out of pocket for so long....
As you know, at the first of the month I participated in a Sleep Study to try and get some solid answer as to why I keep uncontrollably falling. I did that on the 3rd through the 4th and on the 10th I went to hear the results, here's how that went;
I woke up at 6:30 am to start getting around and ready because my appointment was at 10:15 am and the drive over is about an hour. So I showered, fixed my hair, got dressed, and went into the kitchen with my make-up kit (it looks like a make-up artist should own this kit...hahahaa) and sat at the table with my mom, enjoyed the a/c & fan blowing in the room - but not on me, and put my make-up on. We talked, drank coffee, and ate some toast, and we both took our meds at the same time, of course her's are different than mine, but it was kind of funny that after we finished our toast we both reached for our medicines. Usually my mom goes with me to my doctor appointments, but this morning she wasn't feeling very well so she decided to stay home. So about 10 minutes to 9:00 am I left out starting my drive with all the other morning drivers, and man there was more than I thought there would have been.
I get to the doctor's office, check in and begin reading a couple of magazines. One of which was called "Fort Worth, Texas - The City's Magazine" and the cover had these huge words "Top Docs 2008". Well of course I had to check to see if any of my doctor's were listed and if this Sleep Medicine doctor was listed. Much to my delight, all of them were listed and this Sleep Medicine doctor was the number one in the area....I was feeling pretty confident about what this sleep study was going to provide. Good, bad or indifferent, the results would be pretty definite one way or the other....in my mind anyway.
Finally I was called back to speak with the doctor, yes....I took that magazine with me into his office!! I walk into his office, which is something new for me; usually it is into an exam room when you have a follow up. Anyway, I walk in his office and look around this really beautifully decorated office. There were two chairs in front of his desk so I sat in the one on the left, while I was waiting for him to come join me in his office, I continued to look through the magazine. Why is it that you always have to wait 10 minutes or more for the doctor to join you, either in the exam room or his office?? UGH!!
When he came in he sat in the chair next to me instead of behind his desk, which I thought was so odd..comforting, concerning, but still odd. hahahaha. He started by asking how I liked doing the sleep study and if I had any questions about it before we get started on the details of it all. Of course I had to tell him how much I loved the mattress..hahaha, and how nice everyone was to me and I appreciated that!! Then he asked me to go over to the computer so we could look at the graph reading from all the electrodes that were placed all over my body, and take a look at the actual video. Talk about interesting!! To see yourself sleep is really something everyone should experience!! I really don't move around much, just my head and one arm or the other is all that really moved....which I knew I didn't move very much because it hurts, but I had no idea just how still I could be. He began to tell me that during the night when I was sleeping that I did go into REM sleep multiple times, and during the day with the naps every 2 hours that I did go to sleep 3 of those times and very quickly and 2 of those times I did go into REM sleep.
Ok, so now I bet you are asking the same question that I had....What does that all mean?
Well, it means that I do have signs of Narcalepsy which goes along with the diagnosis my other doctor gave me of Cataplexy. He went on to say that the reason for my unexpected and uncontrollable falling is due to Cataplexy. I felt really good to finally have a definite answer for all that has been happening to me for the past several months. I asked if I could have a copy of the video, graphs, and his findings. Yes, I also asked if I could have the magazine of the Top Docs, to which he said yes to all. YAY!!
I walked out of there with my head in the clouds and my eyes set on DSW Shoes again....but I didn't stop this time...hahahaha. I drove back to my mother's, but first I stopped at Subway and got foot long subs for my mom, dad and myself. I was excited to let my parents know that we now have an answer for which could be controlled.
But once my Neurologist heard of his diagnosis, she totally disagreed....greattttt, just great!!!!
Which means I still have to keep my appointment with UT Southwestern Medical Center on July 31st. I sure do hope they can come up with either the same diagnosis or something that can be controlled as well!!
I stayed at my parents house through the weekend, because I had another doctor's appointment on the following Monday. I let him know of the results from the sleep study and he was pleased with himself because he was the one who had that thought in the first place. So he prescribed Imipramine and I went merrily on my way back to my parents house for the night. But I didn't leave until Wednesday because I was exhausted and didn't want to rush to make it home before doing my radio show or leave afterwards and be driving in the dark, so I hung out with my parents one more night. =)
Wednesday morning I loaded up my suitcases, yes that is plural....I had been there for a couple weeks ya know.....anyway, got all my things packed up, got the dogs things packed up and ready to be loaded up in the car. My dad and I toted everything outside and sat things beside my car, I went back in the house for the last little bit of things - my purse, cell phone, keys and to give out hugs. Only one problem....I couldn't find my keys!! We all searched everywhere for them, and I do mean everywhere, but couldn't find them. After an hour of searching and bringing everything back in the house because it was way too hot for them to be left outside for long, I searched through my purse one more time....which made it the 9th or 10th time.....and what do ya know....I found my keys in the outside pocket of my purse....someplace I never put them!!
So....my dad and I toted everything back out and in the car, I got the dogs in and straped in, gave out my hugs and kisses, and away we went, making our way back home.
Three hours later we arrived home to find all my plants in the house from the greenhouse because they weren't tended to the way they needed to be....go figure....They all looked half dead or at least headed in that direction. But I was way too tired to fuss with it right then!! So I unloaded everything out of the car and dropped it all off in the closet and quickly changed my clothes for comfort and made my way into my nice, comfy bed!! WOW did it ever feel nice to be back in my own bed again!! I raised the feet up and lowered the head, put the tv on relaxing music and closed my eyes.....I drifted off to sleep so quick!!
Ever since, I have been either sleeping.....babysitting my two grand-daughters, tending to my plants, or sitting out on the boat dock relaxing and watching the cows!!
Well, until this week that is!! This week has started off with me putting key notes and a speech (of sorts) together for my speaking engagement for the Abilene Holistic Association on Thursday evening. I am really looking forward to it and hope open the eyes of those who are blind to the effects Chronic pain, be from RSD or something else, causes on the mind, body and spirit. If any of you have something you would like for me to add to my speech, please email it to me and I will be sure to include it .... if I don't already have it!!
So, I guess that pretty much gets you up to speed with all that has been going on with me this past month....and for those of you who are on my mailing list for my Newsletter, sorry to have you read the same thing twice....that is if you read my blog also....hahahahaa.
Again, I appreciate all your emails of well wishes.....they truly made me feel so much better!! It is so nice to have you all as friends!!